It’s only in the last decade or so that doctors have come to accept that ADHD is not just a childhood problem. In fact, until recently, most studies and most physicians did not followADHD sufferers beyond adolescence. As a result, there have been very few long-term followup studies. And as with any scientific investigation, the studies that have been done have shown similar but not identical results.
Most studies currently available are what are termed retrospective (“looking back”) studies. In one method, researchers check old clinic records and find a population of children previously diagnosed with ADHD perhaps ten to twenty years before. After attempting to contact these subjects, the researchers study those they succeed in finding who agree to participate. Various methods (such as questionnaires, rating scales, interviews, and checking medical, academic, and police records) are used to evaluate current symptoms of ADHD and life achievements, as well as the psychiatric, social, and emotional variables of these grown-up subjects.
Another method of retrospective study is to find a group of adults diagnosed with adult ADHD and to try, through history taking and looking through old school and medical records, to trace the history of their condition and to determine the presence or absence of various symptoms at earlier stages.
For example, a controlled twenty- to twenty-five-year retrospective study conducted by B. L. Borland and H. K. Heck-man analyzed twenty of thirty-seven men who had been diagnosed as hyperactive in childhood. Nineteen brothers were used as a control group. The researchers found that the majority of the men who had earlier been diagnosed as hyperactive were living normal and productive lives, though more than half continued to show symptoms of hyperactivity and a noticeable number demonstrated clear antisocial behavior. They also found that the hyperactive subjects had not done quite as well as their brothers socially or economically.
A similar followup study conducted in Rhode Island analyzed eighty-one adults, averaging twenty-one years of age, who had been diagnosed with ADHD in childhood. Thirty-two older brothers were used as a control group. The researchers found results similar to those of Borland and Heckman, but with a lower percentage of antisocial problems among the ADHD subjects.
Several other studies have strived to analyze the impact and occurrence of ADHD in adults of varying ages and socioeconomic status, with interesting results. Most importantly, nearly all follow-back studies have concluded that symptoms of ADHD continue into adulthood and can predispose individuals to alcoholism and certain psychiatric problems, most notably character disorders.
There are obviously many problems with trying to reconstruct a clinical picture that may be from twenty years before. A more accurate form of study is the prospective study. The researchers begin with a group of children who have been diagnosed as having ADHD and match them with a group of control subjects, i.e., children matched in age, socioeconomic variables, and intelligence, but with no evidence of ADHD or behavioral problems. These two groups are then followed extensively over many years, with intermittent interviews of the child and family, testing, and so on. These studies necessarily take a long time to complete, and since it is only recently that ADHD in adulthood was recognized, there are not yet many groups of studied children with ADHD who have reached adulthood.
Drs. Gabrielle Weiss and Lily Hechtman of the Montreal Children’s Hospital have published the fifteen-year followup data of an ongoing study of, originally, 104 hyperactive children. They have studied many aspects of these young adults’ lives, including the persistence of ADHD symptoms; psychiatric status; personality pathology, including antisocial behavior; educational and vocational status; socioeconomic status; beliefs and values; as well as general life course and achievements.
They have found that hyperactives had greater difficulties as young adults in several areas when compared with a group of normal controls. Among these are the following.
The hyperactive young adults had more impulsive personality traits.
They were more likely to have been involved in traffic and other accidents.
They were likely to have some persistence of hyperactivity, distractibility, and attentional problems.
They also had a significantly lower level of education and were more prone to leaving school because of poor grades and expulsion.
They were more likely to have a diagnosable psychiatric condition; in particular, a significant number fulfilled the criterion for antisocial personality disorder.
They had much lower self-esteem.
They had less successful social and emotional relationships.
Many questions remain unanswered in the study of adult ADHD, and obviously much more research is needed in this area. The most obvious questions include; Why does ADHD afflict some adults who had it as children, but not others? And to what degree does ADHD in childhood predict personality and psychiatric disorders in adulthood? Which treatment measures can most improve the long-term outcome?
These questions and others are now being addressed. Over 600 children have been enrolled in a six-site NIMH study undertaken with the U.S. Department of Education. This study will compare medication, behavior therapies, psychotherapy, and other clinical treatments available in the child’s community. The first data from that study will be available in fall 1997. But the NIMH intends to continue the study over a long period, providing a look at the long-term course of ADHD and the influence of various treatments on its course and outcome.
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